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The Gap Between Loving and Supporting Someone with Alzheimer's

By Mary Moreland

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An emotional book. Perfect if you want to learn more, or if you want to heal from your grief.

Synopsis

Detailing her first-hand experience caring for a parent with Alzheimer’s, lawyer and author Mary Moreland translates her most painful journey into help for other families facing the devastating illness. The Gap Between: Loving and Supporting Someone with Alzheimer’s reveals Moreland’s process through the stages of grief as she struggles to come to terms with her mother’s Alzheimer’s diagnosis in the wake of her father’s death. Bravely sharing her mother’s decade long battle, she walks readers through the earliest phases of the disease, all the way to her mother’s deathbed.

Alongside her own story of loss, the author delivers insights on protecting and grieving for loved ones with dementia or Alzheimer’s and provides advice on navigating critical matters including legal documentation, diagnostic and educational resources, preparing for and accepting deterioration, and the end-of-life experience. Throughout her remarkable debut book, Moreland’s voice is defined by candor and courage that will resonate with those most in need of her vital perspective.

The Gap Between is an emotional journey through love and loss. It’s a journey I’m way too familiar with, having dealt with this twice. Not my mother (not yet, not ever, I hope) but two of my grandparents. I’ve always felt like I’m mourning them twice, once when they’re diagnosed, twice when they truly pass away. This book described the fear of watching your loved ones slowly forget who they are and who you are very well. It’s heartbreaking and I felt the author pain through her words.

There is also the fear of having Alzheimer yourself, a fear that you cannot do anything about, but learn to live with it. It’s not easy.


The Gap Between also breaks the stigma surrounding the disease and dives deep into what the disease actually entails. It talks about some stages that people tend to forget. I appreciated the information at the beginning. Like I mentioned, I’m very familiar with the disease, so I knew basically everything, but I still didn’t find it boring. The information presented is accurate, well researched and definitely a source for whoever wants to learn more about Alzheimer in a simple and direct way.


The author’s life and her mother felt real and genuine, it isn’t over-exaggerated nor over-dramatic, but it has the perfect balance between real life and engaging enough to be a book. One thing I would say, there are some repeated information about the author’s life at the beginning, that was a little redundant. It wasn’t necessary to repeat them twice, but other than this, the rest of the book flows nicely. The writing style is engaging and the author definitely knows how to convey emotion.


The Gap Between is not only for who has or had to deal with a loved one suffering from Alzheimer, but also for who would love to know more. Perfect for healing from your grief. An emotional book that you will be grateful to have read.

Reviewed by

I’m Sarah, 26, a bookstagrammer who loves sharing her love for reading and on the books I love. I always like to say what I like and what I don’t like in my reviews as I like to think that even what I didn't like, might be for someone else.

Synopsis

Detailing her first-hand experience caring for a parent with Alzheimer’s, lawyer and author Mary Moreland translates her most painful journey into help for other families facing the devastating illness. The Gap Between: Loving and Supporting Someone with Alzheimer’s reveals Moreland’s process through the stages of grief as she struggles to come to terms with her mother’s Alzheimer’s diagnosis in the wake of her father’s death. Bravely sharing her mother’s decade long battle, she walks readers through the earliest phases of the disease, all the way to her mother’s deathbed.

Alongside her own story of loss, the author delivers insights on protecting and grieving for loved ones with dementia or Alzheimer’s and provides advice on navigating critical matters including legal documentation, diagnostic and educational resources, preparing for and accepting deterioration, and the end-of-life experience. Throughout her remarkable debut book, Moreland’s voice is defined by candor and courage that will resonate with those most in need of her vital perspective.

Foreward

On June 2, 2012, I thought I knew what to expect with my mother’s Alzheimer's diagnosis. I was a single mother of two young boys ages six and eight. An ambitious lawyer with goals and passion. A primary breadwinner. An optimist. A blonde-haired size four comfortable in a bathing suit. I could handle anything thrown my way. Just watch me.

June 2, 2012: the day my father passed away unexpectedly. In some ways it was so long ago. I feel like a different person. I am more established and a bit wrinkly. I am now a mother of teenage sons, not young children. I am more private with fewer friends. Heavier with a menopausal belly. Fortunately, 2020 is a perfect cover–the COVID pandemic prevents one from being social (at least in person), and a zoom top with yoga pants and sports shoes (or no shoes) meets all dress requirements.

In other ways, it could have happened only a minute ago. I can tap into those feelings and return to the scene. My mother’s confused face after I asked her to call 911. The kind 911 operator who walked me through CPR while I yelled expletives into the phone and cried uncontrollably. I broke his rib. I know I did. I heard the crack and felt my hands push just a bit deeper into a new hollow in his chest. I can see the firemen storming into the bedroom with the energy of superheroes, only to quickly tell me it was too late. Of course, it was too late. He was dead before I arrived. I realize that now. Sometimes we see what we wish were true as if our will could create a parallel universe.

The day my father passed, my mother and I were going to the store to buy her a new cell phone. I called her before I left to pick her up. My parents referred to me as “Mare.” “Oh, Mare, just pick something out. You know what I like.” Completely understandable. I did know exactly what she liked. Personally, I dread buying a cell phone. So many choices. So many plans. I have no idea how much data I use. Just walking into the store raises my blood pressure and decreases my IQ score. “Besides, your father looks a bit ill. I think I should stay here in case he needs something.” “Ok, I will pick out a phone and be right over.” Was he already dead?

When I arrived, my mother said that Dad was taking a nap. We sat at the breakfast room table setting up her new phone. After I completed adding family members to her contacts, she asked if I would check on my father. “He didn’t look well,” she stated with a concerned tone. “I think there is something wrong with his cheek,” she said while holding her hand next to her cheek.

I knew things were not right when I walked into the bedroom. I had never seen a dead body outside of a funeral home. My mind told me something was wrong, but I thought he was perhaps just very ill. After all, Dad had survived so many things. A quadruple bypass, back surgeries, high blood pressure, knee replacement, skin cancer, high cholesterol, and sleep apnea to name a few. A miracle of modern medicine. My mother asked me what I thought. “What should we do?” I remember asking her slowly and in a calm voice to pick up the phone and call 911. When the operator joined, I heard her panicked voice tell the operator that we thought something was wrong with her husband, but she could not put the words together to explain or answer the questions. Trying not to sound upset, I asked her for the phone. She looked so confused and anguished. She looked helpless and sad. She looked scared and vulnerable. My heart broke, but I needed to attend to more immediate matters. I had to block her out of my mind and talk to the operator.

As I described the scene, my brain realized the full effect of the moment. The operator asked me if I knew CPR. I said no. She asked me if I had taken a CPR class. I told her that I had taken a CPR class at work, but that I had never used it. I recall that she told me not to worry and just to listen and do as she said. This is when the tears started streaming through the wrinkles around my eyes like creeks from melting snow down my cheeks. “Dad, no, shit fuck, no, no, no, come on Dad!” She calmly walked me through CPR, although it sounded like she also was crying. Like muscle memory it came back. I was surprised that the feeling of pressing down on the chest of the mannequin during my CPR class at work and the feeling of pressing down on the chest of my father were in my mind the same. I recall feeling a sense of calm and accomplishment when I felt the chest reduce when I applied my weight and return once I reduced my pressure. I put my full weight into it—if we are going to perform CPR, let’s put everything into it.

The doctor was called. The police arrived. The police attempted to interview my mother until I realized what was happening and intervened.

Yes, she used to put his daily heart medication in his pill container. No, they had a happy marriage. More than fifty years. No, she would not have intentionally made a mistake. She seems a bit confused. Please, talk to me. Please do not ask her any more questions. She is upset, confused, vulnerable. Let me tell you about her Alzheimer’s. She was diagnosed several months ago. Please just let her be. She is very confused, I agree. You are right. 

Close relatives I had called to inform them about my father’s passing ate sandwiches in the breakfast room from groceries my mother had purchased. Horrible phone calls etched in my brain of sons learning of their father’s passing. I did not know that almost a decade later I would make the same phone calls about my mother.

My father lay dead in his bed waiting for the hearse to take him away. The police stayed until the hearse arrived. Although they were not supposed to allow me to sit with him, I felt an overwhelming need to be next to him. They kindly obliged. I sat next to his body and wondered if it were just a shell. I prayed. I wished for a sign. Where was his soul, his essence? Is it just over? Is this how it ends? Does something happen afterwards? I thought perhaps I would receive a sign, something showing me what happens after our bodies wear out. I finally summoned the fortitude to touch his shoulder. It was cold and stiff. No one was home.

A representative of the funeral home eventually arrived that evening in a dark suit and entered the house carrying a single long-stemmed red rose that he presented to my mother with his condolences who broke out in fits of giggles and laughter. He shot a confused look at my teary face.

If only I had realized…these were the good times.

I have since learned more about death, and I know that my father had what people call a good death. He enjoyed a lunch with his friends at a favorite restaurant. He came home and talked to his wife of fifty years. Later I learned from my mother that he had kissed her on the cheek and told her to place his wallet and watch in her purse. He went upstairs to take an afternoon nap and changed into the navy blue silky pajamas that he loved. He died in his sleep.


 

Mary Morelandalmost 3 years ago
"Mary Moreland shares her caring experience and exposes the gaps that trip families up - like the emotional triggers that can stay a lifetime if we aren't prepared for them." -- Lori La Bey, Founder of Alzheimer's Speaks & Co-Founder of Dementia Map
Mary Morelandalmost 3 years ago
"Knowing you're not alone and learning from others who have walked the same path before you is priceless. As is this book, The Gap Between. -- Susie Singer Carter, Filmmaker of My Mom and The Girl, Host of Love Conquers Alz Podcast, Caregiver, Mother, and Daughter.
Mary Morelandalmost 3 years ago
"A helpful book of common-sense guidance for people caring for someone with Alzheimer’s." -- Kirkus Reviews. See the full review on www.kirkusreviews.com

1 Comment

Patrick McTaggartHaving recently published a collection of poems "Our Dementia Journey" sharing my family's experiences of this dreadful disease I completely empathise with the author and what the book is trying to achieve in sharing the experience to help others. Great review as well. I look forward to reading
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over 2 years ago
About the author

Mary Moreland is a lawyer and a single parent of two teenage sons living in Houston, Texas. The Gap Between marks Moreland’s debut as an author, and conveys a moving, deeply personal portrait of her family’s journey through the disease. view profile

Published on June 07, 2022

Published by Brown Books Publishing Group

50000 words

Genre:Health & Wellbeing

Reviewed by